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Posted on Fri, Sep 23, 2005 01:55


DoubleDelight write:
Wind Spirit,

Have you tried Imitrex for migraines? It works like a miracle pill (most of the time) and is non-narcotic.

Sending warm healing energy your way,

DD


DD.....I have to take Tramadol...non- narcotic and Caffiene..that helps for the migraines.....I was reading what Seeme suggested...Hot tub....Unfortunatley for me I can use a hot tub as long as the Jets aren't going it will set off my trigger points and bring on the pain worse...Nortey...Remicade was never suggested to me.....Mo



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Posted on Mon, Sep 19, 2005 05:52


DoubleDelight write:
Seeme said "i get adjusted at least once a mth and have a jetted tub in my bathroom-"

O man, aren't jetted tubs awesome? Jacuzzis are great- Bubbling in one right now would be wonderful!

I am really glad to hear you are feeling better now, Seeme.
DD

DD



ohhhhhhhhhhh yes---and alot of fun if sharing the space with a great man!!!!!!

and yes better--i still have a slight pinched nerve in my neck---buttttttttt not as bad as it was---my wish for you is that whatever you need to do will be the best for you---today they can do so much more than 20 yrs ago

you are in my prayers

  


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Posted on Sun, Sep 18, 2005 17:20

My back pain started in Dec. 04.....two months ago 3xwk have it aligned and elec. nerve stim. (tens) has helped me....saw a site 3w spinalcord dot org ....let me know if ya not able to find it



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Posted on Thu, Sep 15, 2005 21:02

Seeme said "i get adjusted at least once a mth and have a jetted tub in my bathroom-"

O man, aren't jetted tubs awesome? Jacuzzis are great- Bubbling in one right now would be wonderful!

I am really glad to hear you are feeling better now, Seeme.
DD

DD

  


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Posted on Thu, Sep 15, 2005 20:56

Wind Spirit,

Have you tried Imitrex for migraines? It works like a miracle pill (most of the time) and is non-narcotic.

Sending warm healing energy your way,

DD

  


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Posted on Thu, Sep 15, 2005 09:10

I know I might sound like a commercial cuz I said this in the other post--but the Select Comfort Sleep Number bed is great if you deal with back, neck, hip, joint pain. Everyone in my family has one now.



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Posted on Tue, Sep 13, 2005 11:34

DoubleDelight Sorry about you pain and trouble , I just want you to know that I can ride to be with you anytime you need me to be. Trust me I'll be there anytime.
alekat



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Posted on Mon, Sep 12, 2005 22:40

For me I passed out from the chiropractor...had to give that up... then physical therapy was good for all of 15 minutes 'cause it set off the other trigger points so I walked out just as bad or worse than I walked in...Injections in my shoulders and back started to deteriorate my skin so I had to stop that and the vitamin therapy got me sick!....Now I get major migraines that last for 4 days...caffiene helps them! But I keep going and sometimes I sit and cry! and that's ok ...It just gets overwhelming sometimes!



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Posted on Mon, Sep 12, 2005 22:30


DoubleDelight write:
I have Fibromyalgia. Basically means a hell of a lot of pain. I play, I pay. I love to ride and enjoy life, so I try to ride as a second on a comfy bike, which can be simply riding with someone on any bike where they don't pop the clutch a lot, or slam on the brakes. The bike I ride has been adjusted to be as comfy as possible. I love to ride fast, love curves, and think riding is like making love in the open air. i just have to take shorter rides. No 8 hrs of solid riding for me!


DD I suffer severley from fibromyalgia....If I'm not in pain I'm fatigued....It changed my life with a motorcycle accident! I probably had it in my back for quite sometime before but the trauma to my body when I took that hit on the payvment with my bike 'caused the trigger points throughout my body react that I wouldn't be able to move my legs or get out of bed for up to 4 days at a shot.....It's better now but I must take pain medication most of my days to get through it...The worst part for me was acceptance.....but today I know my boundries and can only ride for a certain amount of hours till I need to get off and stretch....and the cold forget it!....and there will be times I can't......Horrible illness and it's lifetime!....So I try to stay positive 'cause I can do more today than I could 2 yrs ago!......Mo



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Posted on Mon, Sep 12, 2005 19:57

Hi DD, I too have nerve damage going on and I have to be real real careful who works on me. I have gone to chiro's who have made me worse instead of better, like you. I was lucky to find one who's wife suffers from the same thing that I have and he has made it his speciality. If you ever make it up to these parts I will take you over to see him. He is also in to holistic therapies. :) Anyway, sounds like you are in good hands and I hope you are feeling better.

  


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Posted on Mon, Sep 12, 2005 19:30

Hi LadyVulcan,

Thanks for letting me know what works for you. Had a great tme in spite of the monster migraine I had on the trip. Been sleeping a lot since I got home and had a healer friend do some energy work. Someone from BK, as a matter of fact.
The last 2 times I got an adjustment from a Chiro, (2 different ones), I ended up in the ER, so it's time for stronger measures once we get some good pics from the MRI. I am a massage therapist, so I do some work on myself-lol- and find it's getting too severe to have anybody work on me, since there is obvious nerve damage going on. Hope you had a great weekend. Please feel the wind for me, when you are flying on your Vulcan next time, k?
DD

  


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Posted on Mon, Sep 12, 2005 17:36


LadyVulcan write:
Sorry that your trip was hampered by migraines, DD. I too have degenerative disc damage in my neck and back.... and, to date nothing has wHAOorked except Vioxx. That has now been pulled from the shelves as most of us know. I now do traction two to three times a week, take Aleve or Ibprofen. I bought a h-o-t tub. If I am real lucky I will treat myself to a deep tissue massage... I get regular adjustments once a month. For me? That is as good as it gets. I hope you find a happy medium on what will work for you.... you kind of just learn to live with it.



i was rear-ended 3x's in metro atlanta the 2nd being the worst--i get adjusted at least once a mth and have a jetted tub in my bathroom--also deep tissue massage helps--but it is sooooooo much better than when i was going thru it--has steriod shots in my neck and what i call double migrane headaches everyday by 4pm for over a mth

so DD my heart goes out to you--pain is hard to live with and the worst thing is the ppl around you get tired of hearing how you feel



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Posted on Sun, Sep 11, 2005 18:43

Revolutinary passion said "I'm hoping that something will come along that will finally relieve my pain, but from my past experience (12-13 years) of being on different pain relievers...it's always best to find out EVERYTHING about the side effects first and foremost and then decide if they are something you can deal with."

Rev: That was one of the great things about running the support group. I made up lists with tables for side affects related to many meds. I am an anti-meds kind of person, prefer to do everything I can naturally, through exercise, etc. Tried everything-supplements, Chinese herbs, diet, even got a dog. After 3 months of owning the dog-she was a stubborn little thing I adopted- she helped blow out all the scar tissue build up around my shoulders and neck. Getting her was probably the best thing I have done! She would drag the leash this way and that way. Strong little dog! It pizzed me off at the time, until I realized my range of motion had opened up a tremendous amount. Then, I was happy to have her be so stubborn, on our walks anyway.
Best,
DD

  


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Posted on Sat, Sep 10, 2005 12:44

Sorry that your trip was hampered by migraines, DD. I too have degenerative disc damage in my neck and back.... and, to date nothing has worked except Vioxx. That has now been pulled from the shelves as most of us know. I now do traction two to three times a week, take Aleve or Ibprofen. I bought a h-o-t tub. If I am real lucky I will treat myself to a deep tissue massage... I get regular adjustments once a month. For me? That is as good as it gets. I hope you find a happy medium on what will work for you.... you kind of just learn to live with it.

  


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Posted on Wed, Aug 24, 2005 22:09

Awesome! Hi, and thank you to everybody who posted here recently.

It is amazing how many people have chronic and or severe pain. People who haven't been there/done that sometimes don't get what spiritual determination it can take to carry on, be the best you can, be the most productive you can and ENJOY everything you can. Physical pain drains energy from a body like water from the bathtub when you pull the plug. Sssshhooop, gurgle,gurgle. Then, there you are, flat out, meditating, massaging, meDicating, doing whatever you can do to get through it and back up on your feet, or two wheels. : )
Two skis, One Life.
My own personal experience when my body started crashing with all this was a real wake up call. A young, seemingly bright female Dr. told me, "Oh, you'll be back up and back to work in no time." She ignored the fact that I had this problem going on for awhile, because she didn't have the file in front of her face. The light bulb went off in my head as I was leaving her office. I thought, "I am a strong self-assured woman. What the H*ell is going to happen to all the other people, especially women when they are faced with this kind of 'educated' ignorance???!!! I decided then and there to put my personal pain to good use. I started a local Support Group, went International. Sometimes I did p*hone calling, organized speakers, newsletters, and mothering from my bed. That's when I couldn't sit up any longer.
I learned how to have fun with my son and give him a great life. Volunteered, set up tons of fun stuff for him to do out in the backyard, right outside my sliding window, so we could talk back and forth while he played baseball, had his friends over for water fun, playing and camping out in a huge tent, and much more.
Nothing in this world can stop me. That's what I thought, until I was hit by a freight train called:pain.
Now, it takes fine tuning and focus. Re-focus and "I think I can, I think I can." Toot-toot!
Still waiting for that big MRI. Hugs and best wishes,
DD

  


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Posted on Fri, Aug 19, 2005 19:19


HarleyChic1 write:
Percoset doesn't work. Actually after a while nothing works - I know I'm on pain killers all the time. I've been on pain killers for so long now Nothing works for me now. you don't want to do oxycontin - that's a bad withdrawal very painful.

I too have a bad back and Neck - my neck was fused last summer -I have a plate and 6 screws in my neck now. But I'm OK I got 99% of my movement back then got into an accident 6 months after my surgery so now I'm fcuked up again. "I can never win"

I know how you feel we Love to play but we pay the price later. I have pain all the time but it doesn't always stop me from playing. Sometimes I just push myself to do things even though it hurts. I refuse to make the pain stop me from doing things.

I'm going to a pain management Dr. starting Next week I hoping he can do something for me. Maybe you should go see a Pain Management Dr. too.


I've had different types of pain for many years.

I have endometriosis which has caused me to not be able to have any more kids, and has caused me such pain that I finally submitted to being a guinea pig to aid in easing my pain. Well, fortunately it worked with very little side effects.

I've seen a pain management Dr. for my lower back because of disc de-generation in L4-L5. I've had epidural steroid injections, facet injections and next sciatical injections. Still...no help in relieving the pain.

I have bottles of pain killers in my med. cabinet that no longer help. My body either ends up rejecting it (be developing allergic reactions) or becomes immune. I can take vicidin like tic-tacs. They're nothing!

I have managed my pain by becoming more in tune with my body. I meditate, do Pilates, and try to focus more on what's going on. I do have to resort to some form of pain reliever at times.

I'm hoping that something will come along that will finally relieve my pain, but from my past experience (12-13 years) of being on different pain relievers...it's always best to find out EVERYTHING about the side effects first and foremost and then decide if they are something you can deal with.

Also, like HarleyChic and myself, find out about any pain management centers in your area. You'd be amazed at what options are out there.

Good luck to you!!

  


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Posted on Fri, Aug 19, 2005 13:46

No to Percoset-

Aww DD, Ive read about that..and have a cousin that has that..It is alot of pain..I hope ur seeing a good Dr? Your in our prayers girl..
~~~~~~~~~~~~~~~~~~~~~~~~~~

Thanks for the sweet words!
I take Neurontin: It's known to help a lot with pain; not a narcotic. I do take it @ night 'cause it is relaxing. It is also great for migraine stoppage.
I was a support group leader for 3 yrs and an international sgl for 5. I only stopped when my son asked me to stop taking 'all those calls'.
We all just do the best we can...

  


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Posted on Fri, Aug 19, 2005 03:24


DoubleDelight write:
Percoset

Aww DD, Ive read about that..and have a cousin that has that..It is alot of pain..I hope ur seeing a good Dr? Your in our prayers girl..

Thanks for the sweet words!
I take Neurontin: It's known to help a lot with pain; not a narcotic. I do take it @ night 'cause it is relaxing. It is also great for migraine stoppage.
I was a support group leader for 3 yrs and an international sgl for 5. I only stopped when my son asked me to stop taking 'all those calls'.
We all just do the best we can...



Hope ur doing well..

  


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Posted on Mon, Aug 15, 2005 03:43

Aww DD, Ive read about that..and have a cousin that has that..It is alot of pain..I hope ur seeing a good Dr? Your in our prayers girl..